Emma Heming is keeping her head up amid her husband Bruce Willis' ongoing battle with frontotemporal dementia.
Since the Die Hard actor's family confirmed his FTD diagnosis in 2023, the MakeTime Wellness founder has become a steadfast advocate for those fighting FTD and their caregivers as she is for her husband.
The couple has been married since 2009, and are parents to two daughters, Mabel Ray, 14, and Evelyn Penn, 12.
© WireImageEmma, appearing on The TODAY Show last week, gave a health update on Bruce, 71, sharing: "We're doing well. My husband is supported and loved. We're doing the best we can under the circumstances."
Emma, who wrote a book meant to serve in part as a guide for caregivers, The Unexpected Journey: Finding Strength, Hope, and Yourself on the Caregiving Path, which was released in September 2025, further maintained the importance of also caring for oneself while someone else is depending on you.
"What I've learned is that it's so important to care for ourselves. If we're not caring for ourselves, how can we care for the people that we love in our lives."
© InstagramAt the time of her book release, Emma, 47, opened up about what caring for Bruce looked like, noting that his variant of FTD, primary progressive aphasia (PPA), strips away one's language over time.
"For us, now, our communication is different, but our connection is very much intact," she told TODAY at the time, maintaining that he was "doing remarkably well" despite the FTD.
While promoting her book, Emma also spoke with Diane Sawyer for an ABC special, and shared she isn't sure Bruce "ever really connected the dots" to understand his diagnosis, though still, she noted he "is still very mobile. Bruce is in really great health overall, you know," but that "the language is going, and, you know, we've learned to adapt … and we have a way of communicating with him, which is just a ... different way." She added: "It's just his brain that is failing him."
© Getty ImagesEarlier this year, in honor of Bruce's 71st birthday, Emma reflected on the tough realities of his FTD diagnosis, wrote on Instagram: "This journey with frontotemporal dementia (FTD) has opened my eyes to the realities so many families face. It's what inspired me to create The Emma & Bruce Willis Fund to raise awareness of FTD, support research, and stand beside the caregivers who carry so much every day."
© InstagramDirecting fans to the couple's foundation, she further wrote: "If you'd like to honor Bruce today, please consider supporting the fund or another organization working in this space, or simply checking in on a caregiver — a small act of kindness that can mean so much."
Bruce's family first publicly disclosed in 2022 that he had been diagnosed with aphasia, before sharing that the diagnosis was later specified to be FTD. In addition to his daughters with Emma, Bruce also shares daughters Rumer Willis, 37, Scout Willis, 34, and Tallulah Willis, 32, with ex-wife Demi Moore, to whom he was married from 1987 to 2000.
